Introduction to the IMPORTANCE Project
Patients who rely on long-term respiratory or sleep support therapies have a unique opportunity to contribute to the improvement of their care. The IMPORTANCE project, a clinical research initiative endorsed by the European Respiratory Society and supported by the European Lung Foundation, is conducting an international survey. This survey aims to gather insights from patients about their experiences with various treatments, including positive airway pressure (PAP) machines, noninvasive ventilation, and home mechanical ventilation.
What the Survey is About
The survey is designed to be straightforward, referring to all the mentioned devices as “ventilators,” which includes CPAP and BiPAP machines commonly used for sleep apnea. By simplifying the terminology, the survey ensures that all participants can easily understand and respond to the questions. The goal is to comprehend how these therapies are provided and monitored across different countries and to identify what matters most to patients.
Participation and Impact
Participation in the survey is entirely voluntary and anonymous, ensuring the privacy and comfort of all respondents. The survey should take approximately 15–20 minutes to complete, and the deadline for submission is Wednesday, December 31, 2025. By contributing to this survey, patients can help inform future international guidelines and support the development of better, value-based care. The information gathered will be invaluable in shaping the direction of respiratory and sleep support therapies, potentially improving the lives of countless individuals worldwide.
How to Participate
To take part in this important initiative, patients can access the survey at https://www.surveymonkey.com/r/IMPORTANCEHMV. This link provides direct access to the survey, allowing participants to share their experiences and opinions conveniently.
Conclusion
The IMPORTANCE project survey represents a significant step towards enhancing the care and support provided to patients requiring long-term respiratory or sleep support therapies. By participating, individuals can make a meaningful contribution to the future of healthcare, helping to ensure that treatments are tailored to meet the needs and preferences of patients. The anonymous and straightforward nature of the survey makes it accessible to all eligible participants, and the potential impact of the collective feedback could be profound. As the deadline approaches, it is crucial for those who can to take part and help pave the way for improved care and support.